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| WHARF volunteers from R.A. Podar College led discussions with students
about WHARF ’s goals and accomplishments. |
Community-based efforts address
HIV/AIDS epidemic in India
On December 1, 2005, health care providers and activists around the world
once again observed World AIDS Day. Annually people come together on this
day and the days following for a series of events to focus attention on
HIV/AIDS. The events of World AIDS Day help to highlight scientific research
related to HIV/AIDS, promote fundraising efforts, commemorate victims of
this epidemic, and provide education to aid with prevention and treatment.
With the most recent observance of this day just behind us, this seems a
natural time to review the efforts of HMI and its partners to address HIV/AIDS.
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| Dr. Harvey Makadon |
WHARF provides education to frontline
caregivers
In India, HMI continues to deliver free education programs under the auspices
of WHARF (Wockhardt-Harvard Medical International HIV/AIDS Education and Research
Foundation), an NGO formed by HMI and Wockhardt Hospitals, Ltd. in 2002. WHARF
was spearheaded by Harvey Makadon, MD, HMI vice president of health systems,
in collaboration with faculty and physicians in India. Utilizing a train-the-trainer
approach, WHARF seeks to build the capacity of frontline health care providers
confronting the HIV/AIDS epidemic, and is the catalyst for collaborations between
providers all over India.
Dr. Rakhi Nair, a founding member of the WHARF faculty, reports that since
its inception, 36 basic WHARF programs have provided training for over 1,200
people. These trainees, as a condition of admission into the program, have
each pledged to train five more caregivers. It is estimated that as of this
writing, more than 3,000 more caregivers have been trained.
“The program participants are not only clinicians or students who are in
medical school, but also counselors, social workers, and paramedical students,” said
Nair.
WHARF’s programs address the full spectrum of HIV/AIDS-related issues,
exploring the epidemiological impact at both the global and country level,
as well as presenting the latest knowledge in the clinical areas, including
the principles of antiretroviral therapy, prevention and management of opportunistic
infections, prevention of mother-to-child transmission, and HIV virology and
its pathogenesis. The programs also cover HIV care from a primary care perspective,
and emphasize prevention. The WHARF faculty includes clinicians from both Harvard
Medical School and India. WHARF’s programs are funded in part by a grant
from the Horace Goldsmith Foundation.
WHARF has also established an advanced program for providers who have
completed the basic program or been in practice for at least four years.
To date, six
advanced programs have been held, and they are expected to continue. “The
basic program participants are usually very enthusiastic to attend the advanced
program,” said Nair.
World AIDS Day programs reach out to
young people
WHARF faculty organized a series of educational events in Mumbai to mark World
AIDS Day, including three programs for 540 college students, a community-based
program in Dharavi that was attended by 75 boys, and a basic WHARF training
program at Prince Aly Khan Hospital for 54 health care professionals.
Dharavi program uncovers lack of knowledge
about HIV/AIDS
Last summer, Nair led a program in Dharavi, the largest slum area in Mumbai.
The goal of this program was to provide training and education to local providers,
and assess knowledge about HIV/AIDS in the community.
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| Lakshmi Nambiar (in blue, at center) participated
in a WHARF program held in Dharavi. |
Lakshmi Nambiar, a student at Massachusetts Institute of Technology
(MIT) in Boston, participated in this program as part of MIT’s Douglas Traveling
Fellowship for Juniors. Her task was to conduct a survey of local residents
to find out what they knew and understood about HIV/AIDS. She went door-to-door
throughout Dharavi and spoke to approximately 200 women. “I found that
doctor-patient interactions in the community failed to address many of the
concerns of the women,” said Nambiar. “Many of the women surveyed
had first-hand experience with HIV/AIDS as close relatives, including spouses,
had died due to the disease. However, despite their visits with doctors, they
had received no counseling and many remained unaware of the routes of transmission.”
Addressing needs in rural settings
In July 2004, the predominantly tribal district of Jhabua was the site of an
education program aimed at providing nurses, midwives, teachers, and community
leaders with the tools and knowledge to address the HIV/AIDS problem in the
region. The two-day program attracted a diverse group of 170 participants.
WHARF became involved in this program because of Dr. Fabian Toegel, who was
then a student at Ludwig Maximilians University, an HMI partner institution
located in Munich, Germany. Toegel works with the Association of Partners of
India (API), a Germany-based NGO involved in several health-related projects
in Jhabua. Makadon connected Toegel with WHARF faculty members Dr. Deepak Batura
and Dr. Rakhi Nair.
Toegel reports that API has continued to work with WHARF to conduct voluntary
counseling and testing centers for HIV/AIDS patients in four key towns across
Jhabua, and collect epidemiological data from local patients.
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In a 2005 report, NACO estimated that 5.1 million people
in India were infected with HIV—nearly tripling estimates from a
decade ago. However, an announcement just two years ago provided a glimmer
of hope for these patients. On the eve of World AIDS Day in 2003, India’s
health ministry announced that it would introduce anti-retroviral treatment
for people living with HIV/AIDS. In 2004, India introduced free antiretroviral
treatment in government hospitals, initially in six high-prevalence states.
More optimism came that year with a change in government and an increased
political commitment to implement a multisectoral programme on HIV and
AIDS.
Recently, the ministry admitted that it was running well behind its target for
providing anti-AIDS drugs. The Times of India estimated that at the end of November,
only 15,000 people had received the anti-retroviral drug.
Said Makadon, “Due to the vast size of the country, there are many challenges
involved in expanding the high-level commitment to all states and to the grass-roots
level, as well as in involving ministries and departments other than health,
and in scaling up interventions to meet the projected needs for prevention and
care.”
In November, in a speech before the Parliamentary Forum on HIV/AIDS of the elected
representatives of the northeast of India, Peter Piot, MD, executive director
of UNAIDS, called for an exceptional response to the exceptional challenge of
AIDS. “AIDS is one of the most serious challenges of the 21st century,” said
Piot. “ It is on par with global warming, massive poverty, and terrorism.”
He outlined lessons the world has learned over the past 25 years. “The
first and most important lesson is that AIDS is a problem with a solution. Second,
no amount of money can replace leadership,” he said. Piot called on leaders
in the northeast of India to focus their efforts in addressing the epidemic by
scaling up programs for the general public and also with groups most at risk. “Leadership
on AIDS often requires going against the mainstream in society because we have
to deal with issues that are taboo for many people, including sex and drugs.”
World AIDS Day statement from the Director-General of the World Health Organization
UNAIDS/World Health Organization AIDS Epidemic Update 2005
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